I just don't get it. Some days are so fine that I sometimes wonder if the doctors got it wrong. Perhaps he is not on the autistic spectrum at all. I mean - earlier in the week he had a couple of really good days. Did all his homeschool work really well, without fuss and did lots and lots of work, and then yesterday it takes until 4.30pm to do ONE small piece of work.
And then today, perfect all morning, special afternoon treat to go an watch Shrek with Granny in the afternoon (during which time I miss him like crazy because I am so used to having to try to stay ten steps ahead when he is around), eats dinner, but then bedtime...MAJOR MELTDOWN.
I just don't get it. I don't get the variability and I wonder if I will ever understand. These certainly are nothing compared to some of the worst experiences but they are stark reminders that our son certainly is different and any wishful thinking I have about a misdiagnosis flies straight out of the window.
Like a lot of parents with children on the spectrum, there is so much that I just wouldn't want any other way. A lot of J's quirks are what make him unique and special and we love that about him. I just wish we could help him cope better with the areas of his life that overwhelm him.
I guess we are just going to have to accept that to some extent it will always be a roller coaster ride with it's ups and downs, good days and bad days and we are just going to have to get better at accepting that is what a roller coaster ride does!